
video
Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.
00:00:05:03 - 00:00:06:15 Good morning dad. 00:00:06:15 - 00:00:09:15 Good morning! You’re doing okay? 00:00:09:21 - 00:00:10:15 Good morning. 00:00:10:15 - 00:00:14:09 I had a dream just recently where some people came to get dad 00:00:14:09 - 00:00:17:05 and they said that I wasn't taking really good care of him and 00:00:17:05 - 00:00:20:16 they took his bed out with him in it and I was begging them not to. 00:00:22:00 - 00:00:26:06 I cried so much that I woke myself up crying. 00:00:28:22 - 00:00:30:02 You remember I told you today 00:00:30:02 - 00:00:33:02 I'm gonna be going to New York for Jordan's graduation? 00:00:35:09 - 00:00:36:21 Junior and Kim and Caprice 00:00:36:21 - 00:00:39:16 are gonna be taking care of you while I'm gone, okay? Is that okay? 00:00:39:16 - 00:00:43:01 You know, I'm going on vacation Monday, and we'll stay through 00:00:43:01 - 00:00:46:12 Sunday, which is the longest time I've been away from dad. 00:00:47:22 - 00:00:49:05 I can't even remember. 00:00:50:06 - 00:00:52:22 Just everytime you turn him for the hip, daily, ya know 00:00:52:22 - 00:00:54:11 just check it and just make sure it looks okay. Okay. 00:00:54:11 - 00:00:56:14 I'm excited because I love New York. 00:00:56:21 - 00:00:59:08 I haven't hung out with my older sister in a while. 00:00:59:08 - 00:01:03:01 I get to see an old friend while I'm in town and sleep. 00:01:03:07 - 00:01:05:01 I get to sleep through the night. 00:01:05:01 - 00:01:06:22 So all those things are wonderful. 00:01:08:14 - 00:01:10:00 Will I relax? 00:01:10:00 - 00:01:11:03 I don’t know. 00:01:11:03 - 00:01:13:03 Can you just hold the phone up to his ear? 00:01:13:03 - 00:01:15:03 Sure I will. Okay. 00:01:15:03 - 00:01:17:11 A little bit nervous about leaving him. 00:01:17:11 - 00:01:18:20 You know, he's well taken care of. 00:01:18:20 - 00:01:21:12 Oh, that's not it. I just, I’m 00:01:21:12 - 00:01:24:04 afraid he's not going to remember me when I get back like he didn’t 00:01:24:04 - 00:01:25:06 remember you the other day. 00:01:25:06 - 00:01:25:17 Mmmhmmm. 00:01:25:17 - 00:01:28:17 He's not the same person that he once was. 00:01:31:16 - 00:01:33:09 I don't know with his dementia 00:01:33:09 - 00:01:36:09 what his mind is thinking throughout the day. 00:01:37:20 - 00:01:40:05 We don't hear much of his voice anymore. 00:01:40:05 - 00:01:41:15 You comfortable dad? 00:01:41:15 - 00:01:42:04 mm-hmm 00:01:42:04 - 00:01:42:22 Okay. 00:01:42:22 - 00:01:45:22 So getting close to him kind of helps me 00:01:46:03 - 00:01:48:10 feel like I'm having that connection with him. 00:01:48:10 - 00:01:50:09 It's just hard to see life in him. 00:01:50:09 - 00:01:51:19 And I'm trying to get something 00:01:52:19 - 00:01:55:19 that maybe isn't there. 00:01:56:12 - 00:01:57:22 [Laughing] 00:01:59:10 - 00:02:00:22 I just can't imagine anyone 00:02:00:22 - 00:02:03:22 taking better care of him than I am. 00:02:04:11 - 00:02:07:11 Dad, are you full or do you want more sandwich? 00:02:08:10 - 00:02:09:11 More sandwich. 00:02:09:11 - 00:02:10:20 Ok good. 00:02:10:20 - 00:02:12:22 Junior’s got more sandwich for you, dad. 00:02:15:17 - 00:02:17:22 You give him a big old piece. 00:02:17:22 - 00:02:20:10 Ok. I think I been doing this long enough, 00:02:20:10 - 00:02:23:10 I know what to give him.I know, but wow! 00:02:24:03 - 00:02:26:03 Two weeks ago, maybe 00:02:26:03 - 00:02:29:03 my brother was here helping me with dad and 00:02:30:07 - 00:02:33:07 my brother said, hey, dad, do you know who I am? 00:02:33:13 - 00:02:36:08 And he said, yeah, my wife. 00:02:36:08 - 00:02:39:08 And he broke my heart. 00:02:43:13 - 00:02:45:04 It scares me to be away from him 00:02:45:04 - 00:02:48:04 for that long. 00:02:53:03 - 00:02:54:13 Because we have such a routine, 00:02:54:13 - 00:02:57:13 I'm afraid that he's going to forget me. 00:03:00:04 - 00:03:01:01 You remember I told you today 00:03:01:01 - 00:03:03:17 I'm gonna be going to New York so I can see Jordan graduate? 00:03:04:21 - 00:03:05:20 Okay, I’m going to be leaving 00:03:05:20 - 00:03:08:01 in a little bit for the airport, okay? 00:03:09:17 - 00:03:10:19 Got it? Mhmm. 00:03:11:18 - 00:03:12:13 You got the keys? 00:03:22:09 - 00:03:25:12 Dad and I always had this, this closeness. 00:03:27:23 - 00:03:29:11 We had just a lot of 00:03:29:11 - 00:03:32:01 father daughter conversations. 00:03:32:01 - 00:03:35:01 And I just miss hearing dad’s voice. 00:03:39:16 - 00:03:42:16 Just missing who he really was. 00:03:44:08 - 00:03:47:08 Yeah. 00:03:49:07 - 00:03:51:11 When I took the plane back from New York, 00:03:51:11 - 00:03:54:11 I had a lot of mixed emotions. 00:03:55:14 - 00:03:58:14 I thought, oh my gosh, the fun is over. 00:04:00:14 - 00:04:03:13 But also, I needed to lay eyes on dad. 00:04:03:13 - 00:04:07:03 I needed that acknowledgement that he remembered me. 00:04:08:17 - 00:04:11:09 Did I tell you I had gone to New York, and I was looking 00:04:11:09 - 00:04:14:09 at Jordan and, pumpkin spending some time with them. 00:04:14:12 - 00:04:15:06 mm-hmm 00:04:15:09 - 00:04:17:15 Yeah, Jordan graduated from high school. 00:04:18:02 - 00:04:18:20 hmm 00:04:19:09 - 00:04:21:23 Yeah, and Pumpkin had her birthday this past weekend. 00:04:23:20 - 00:04:24:18 I gave Jordan some 00:04:24:18 - 00:04:27:06 graduation money from you. Ok? 00:04:27:06 - 00:04:28:00 hmm 00:04:28:14 - 00:04:31:14 I love you. 00:04:31:21 - 00:04:33:18 Do you know who this is, Dad? 00:04:33:18 - 00:04:34:12 mm-hmm 00:04:34:12 - 00:04:35:15 Who am I? 00:04:36:12 - 00:04:37:13 Lynnette. 00:04:37:13 - 00:04:39:07 Oh. 00:04:40:14 - 00:04:42:03 I love you so much. 00:04:42:03 - 00:04:45:03 When he said my name 00:04:45:11 - 00:04:47:12 It sounded like dad again. 00:04:48:14 - 00:04:50:12 You know, like my old dad. 00:04:51:08 - 00:04:54:08 Just kind of matter of fact. 00:04:57:17 - 00:04:58:15 okay. 00:04:58:15 - 00:05:01:08 And that's all I needed. 00:05:01:08 - 00:05:01:23 It's all I needed.
Lynnette has been caring for her father Thomas for five years without taking a vacation. Now, she has an opportunity to go visit her family in New York, and be there for her beloved nephew’s graduation. Even though she knows there are other responsible people who can take care of her father, Lynnette’s fear of leaving him is real. With his dementia worsening every day, Lynnette worries that their relationship is becoming one-sided and that if she leaves now, he might forget her. A portrait of devotion and selflessness in the face of the impending loss of a loved one.
There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream now on WellBeings.org, the PBS App and PBS.org.
Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.
Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.
Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.
Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.