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Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.

Transcript
00:00:05:03 - 00:00:06:15
Good morning dad.

00:00:06:15 - 00:00:09:15
Good morning! You’re doing okay?

00:00:09:21 - 00:00:10:15
Good morning.

00:00:10:15 - 00:00:14:09
I had a dream just recently
where some people came to get dad

00:00:14:09 - 00:00:17:05
and they said that I wasn't
taking really good care of him and

00:00:17:05 - 00:00:20:16
they took his bed out with him in it
and I was begging them not to.

00:00:22:00 - 00:00:26:06
I cried so much that
I woke myself up crying.

00:00:28:22 - 00:00:30:02
You remember I told you today

00:00:30:02 - 00:00:33:02
I'm gonna be going to New York
for Jordan's graduation?

00:00:35:09 - 00:00:36:21
Junior and Kim and Caprice

00:00:36:21 - 00:00:39:16
are gonna be taking care of you
while I'm gone, okay? Is that okay?

00:00:39:16 - 00:00:43:01
You know, I'm going on vacation
Monday, and we'll stay through

00:00:43:01 - 00:00:46:12
Sunday, which is the longest time
I've been away from dad.

00:00:47:22 - 00:00:49:05
I can't even remember.

00:00:50:06 - 00:00:52:22
Just everytime you turn him
for the hip, daily, ya know

00:00:52:22 - 00:00:54:11
just check it and just make sure it looks okay.
Okay.

00:00:54:11 - 00:00:56:14
I'm excited because I love New York.

00:00:56:21 - 00:00:59:08
I haven't hung out
with my older sister in a while.

00:00:59:08 - 00:01:03:01
I get to see an old friend
while I'm in town and sleep.

00:01:03:07 - 00:01:05:01
I get to sleep through the night.

00:01:05:01 - 00:01:06:22
So all those things are wonderful.

00:01:08:14 - 00:01:10:00
Will I relax?

00:01:10:00 - 00:01:11:03
I don’t know.

00:01:11:03 - 00:01:13:03
Can you just hold the phone
up to his ear?

00:01:13:03 - 00:01:15:03
Sure I will.
Okay.

00:01:15:03 - 00:01:17:11
A little bit nervous
about leaving him.

00:01:17:11 - 00:01:18:20
You know, he's well taken care of.

00:01:18:20 - 00:01:21:12
Oh, that's not it. I just, I’m

00:01:21:12 - 00:01:24:04
afraid he's not going to remember me
when I get back like he didn’t

00:01:24:04 - 00:01:25:06
remember you the other day.

00:01:25:06 - 00:01:25:17
Mmmhmmm.

00:01:25:17 - 00:01:28:17
He's not the same person
that he once was.

00:01:31:16 - 00:01:33:09
I don't know with his dementia

00:01:33:09 - 00:01:36:09
what his mind is thinking
throughout the day.

00:01:37:20 - 00:01:40:05
We don't hear much of his voice
anymore.

00:01:40:05 - 00:01:41:15
You comfortable dad?

00:01:41:15 - 00:01:42:04
mm-hmm

00:01:42:04 - 00:01:42:22
Okay.

00:01:42:22 - 00:01:45:22
So getting close to him
kind of helps me

00:01:46:03 - 00:01:48:10
feel like I'm having that connection
with him.

00:01:48:10 - 00:01:50:09
It's just hard to see life in him.

00:01:50:09 - 00:01:51:19
And I'm trying to get something

00:01:52:19 - 00:01:55:19
that maybe isn't there.

00:01:56:12 - 00:01:57:22
[Laughing]

00:01:59:10 - 00:02:00:22
I just can't imagine anyone

00:02:00:22 - 00:02:03:22
taking better care of him than I am.

00:02:04:11 - 00:02:07:11
Dad, are you full
or do you want more sandwich?

00:02:08:10 - 00:02:09:11
More sandwich.

00:02:09:11 - 00:02:10:20
Ok good.

00:02:10:20 - 00:02:12:22
Junior’s
got more sandwich for you, dad.

00:02:15:17 - 00:02:17:22
You give him a big old piece.

00:02:17:22 - 00:02:20:10
Ok. I think I been doing this
long enough,

00:02:20:10 - 00:02:23:10
I know what to give him.I know,
but wow!

00:02:24:03 - 00:02:26:03
Two weeks ago, maybe

00:02:26:03 - 00:02:29:03
my brother was here
helping me with dad and

00:02:30:07 - 00:02:33:07
my brother said, hey, dad,
do you know who I am?

00:02:33:13 - 00:02:36:08
And he said, yeah, my wife.

00:02:36:08 - 00:02:39:08
And he broke my heart.

00:02:43:13 - 00:02:45:04
It scares me to be away from him

00:02:45:04 - 00:02:48:04
for that long.

00:02:53:03 - 00:02:54:13
Because we have such a routine,

00:02:54:13 - 00:02:57:13
I'm afraid
that he's going to forget me.

00:03:00:04 - 00:03:01:01
You remember I told you today

00:03:01:01 - 00:03:03:17
I'm gonna be going to New York
so I can see Jordan graduate?

00:03:04:21 - 00:03:05:20
Okay, I’m going to be leaving

00:03:05:20 - 00:03:08:01
in a little bit for the airport,
okay?

00:03:09:17 - 00:03:10:19
Got it? Mhmm.

00:03:11:18 - 00:03:12:13
You got the keys?

00:03:22:09 - 00:03:25:12
Dad and I always had this, this closeness.

00:03:27:23 - 00:03:29:11
We had just a lot of

00:03:29:11 - 00:03:32:01
father daughter conversations.

00:03:32:01 - 00:03:35:01
And I just miss hearing dad’s voice.

00:03:39:16 - 00:03:42:16
Just missing who he really was.

00:03:44:08 - 00:03:47:08
Yeah.

00:03:49:07 - 00:03:51:11
When I took the plane
back from New York,

00:03:51:11 - 00:03:54:11
I had a lot of mixed emotions.

00:03:55:14 - 00:03:58:14
I thought,
oh my gosh, the fun is over.

00:04:00:14 - 00:04:03:13
But also,
I needed to lay eyes on dad.

00:04:03:13 - 00:04:07:03
I needed that acknowledgement
that he remembered me.

00:04:08:17 - 00:04:11:09
Did I tell you I had gone
to New York, and I was looking

00:04:11:09 - 00:04:14:09
at Jordan and, pumpkin
spending some time with them.

00:04:14:12 - 00:04:15:06
mm-hmm

00:04:15:09 - 00:04:17:15
Yeah, Jordan
graduated from high school.

00:04:18:02 - 00:04:18:20
hmm

00:04:19:09 - 00:04:21:23
Yeah, and Pumpkin had her
birthday this past weekend.

00:04:23:20 - 00:04:24:18
I gave Jordan some

00:04:24:18 - 00:04:27:06
graduation money from you. Ok?

00:04:27:06 - 00:04:28:00
hmm

00:04:28:14 - 00:04:31:14
I love you.

00:04:31:21 - 00:04:33:18
Do you know who this is,
Dad?

00:04:33:18 - 00:04:34:12
mm-hmm

00:04:34:12 - 00:04:35:15
Who am I?

00:04:36:12 - 00:04:37:13
Lynnette.

00:04:37:13 - 00:04:39:07
Oh.

00:04:40:14 - 00:04:42:03
I love you so much.

00:04:42:03 - 00:04:45:03
When he said my name

00:04:45:11 - 00:04:47:12
It sounded like dad again.

00:04:48:14 - 00:04:50:12
You know, like my old dad.

00:04:51:08 - 00:04:54:08
Just kind of matter of fact.

00:04:57:17 - 00:04:58:15
okay.

00:04:58:15 - 00:05:01:08
And that's all I needed.

00:05:01:08 - 00:05:01:23
It's all I needed.

Lynnette has been caring for her father Thomas for five years without taking a vacation.  Now, she has an opportunity to go visit her family in New York, and be there for her beloved nephew’s graduation. Even though she knows there are other responsible people who can take care of her father, Lynnette’s fear of leaving him is real. With his dementia worsening every day, Lynnette worries that their relationship is becoming one-sided and that if she leaves now, he might forget her. A portrait of devotion and selflessness in the face of the impending loss of a loved one.  

There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream now on WellBeings.org, the PBS App and PBS.org.


Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.

Support for Caregiving Provided By

Otsuka logo
OneAmerica Financial Foundation logo
Comfort Keepers logo
CareScout logo
care.com logo
Evelyn Y. Davis Foundation
RKMF logo
AVDF logo
Ford Foundation logo
rcw foundation logo
Cherish Health logo
Next 50 logo
NAMI logo
Path Foundation logo
care fund logo
JAHF logo
CPB logo

Outreach and Engagement Partners for Caregiving

RCI logos
GIA logo
Milken Institute logo
global coalition on aging logo
Wallis Annenberg GenSpace logo
Elizabeth Dole Foundation logo
National Partnership for Health Care and Hospice Innovation (NPHI) logo
NMHA logo
Fred Rogers Productions logo
Caregiver Action Network (CAN) logo
CTAC logo
AACY logo
CAG Logo
SHRM logo
NAC logo
LSA logo
capc logo
People logo
Forbes logo

Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.

Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.

Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.

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