
video
Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.
00:00:05:04 - 00:00:07:01 All right, it's time. 00:00:07:01 - 00:00:09:08 Wake up. 00:00:09:08 - 00:00:09:14 Come on. 00:00:09:14 - 00:00:12:09 We got to pick out your clothes. Now. 00:00:12:09 - 00:00:13:04 And what do you got today? 00:00:13:04 - 00:00:16:04 Tuesday. You got library. 00:00:16:07 - 00:00:19:07 All right, so go get your books, get everything ready. 00:00:20:02 - 00:00:20:06 All right. 00:00:20:06 - 00:00:21:08 And then your eggs are right here. 00:00:21:08 - 00:00:23:10 When you're done. 00:00:23:10 - 00:00:25:10 If you take the switch now. 00:00:25:10 - 00:00:27:17 Okay, here I come. 00:00:27:17 - 00:00:28:14 Ty was three. 00:00:28:14 - 00:00:30:17 When can Leah had her massive stroke. 00:00:30:17 - 00:00:33:17 And when our lives turned upside down. 00:00:35:21 - 00:00:37:03 Kanlaya and I always said that 00:00:37:03 - 00:00:40:03 if, God forbid, anything happened to one of us, 00:00:40:03 - 00:00:43:02 we ought to put him as our focus. 00:00:43:20 - 00:00:46:00 But for me, it was like, all right, 00:00:46:00 - 00:00:49:19 if I'm going to put Ty first, he needs his mom. Oh. 00:00:51:15 - 00:00:54:15 But I trust you. If. 00:00:57:07 - 00:00:59:18 Cousin Leah was 35 at the time. 00:00:59:18 - 00:01:01:12 Young, healthy, 00:01:01:12 - 00:01:04:21 no medical issues to all of a sudden become paralyzed. 00:01:06:19 - 00:01:09:19 Her brain was permanently damaged. 00:01:10:21 - 00:01:13:07 At that time, I didn't even know what a caregiver was, 00:01:13:07 - 00:01:16:04 but I always thought it was for 00:01:16:04 - 00:01:18:14 old folks or parents. 00:01:18:14 - 00:01:21:15 I just learned as much as I could at the hospital 00:01:21:22 - 00:01:24:22 changing her, cleaning her. 00:01:26:00 - 00:01:26:18 The transition 00:01:26:18 - 00:01:29:18 from hospital to home was tough. 00:01:29:22 - 00:01:32:22 You're not prepared for it. 00:01:35:05 - 00:01:36:14 It took a lot of trial and error 00:01:36:14 - 00:01:39:14 to get things right. 00:01:43:17 - 00:01:46:09 Oh, you want to do that? 00:01:46:09 - 00:01:47:18 Yeah. 00:01:47:18 - 00:01:49:21 Yeah, you get one point. 00:01:49:21 - 00:01:51:19 In the beginning, one of the most difficult 00:01:51:19 - 00:01:55:07 things was juggling between Cornelia and Ty. 00:01:58:19 - 00:01:59:16 All right, shoes on. 00:01:59:16 - 00:02:02:16 We're going to go now. 00:02:02:16 - 00:02:05:16 It was always Ty and I taking care of her. 00:02:06:05 - 00:02:09:05 He grew up really fast through this whole experience. 00:02:10:21 - 00:02:12:05 Okay. 00:02:12:05 - 00:02:14:04 Oh, it was great. See, I love you. 00:02:14:04 - 00:02:15:21 See you after my mom, I love you. 00:02:15:21 - 00:02:17:17 I love you, I love you. 00:02:17:17 - 00:02:19:08 My main focus was always. 00:02:19:08 - 00:02:21:01 Just give him the most. 00:02:21:01 - 00:02:22:14 Normal childhood as possible. 00:02:23:14 - 00:02:24:18 Here's your backpack. 00:02:24:18 - 00:02:27:17 This one's. 00:02:28:17 - 00:02:29:04 Got it. 00:02:29:04 - 00:02:32:04 All right, let's roll. 00:02:32:18 - 00:02:35:18 It is tough to see the future right now. 00:02:36:17 - 00:02:37:21 I had to quit my job. 00:02:37:21 - 00:02:39:09 I couldn't juggle 00:02:39:09 - 00:02:42:09 that and take care of my family at the same time. 00:02:43:01 - 00:02:46:20 We've been living off of savings and donations. Hi. 00:02:46:20 - 00:02:47:08 Good morning. 00:02:47:08 - 00:02:50:08 I need to refill a prescription for my wife. 00:02:51:23 - 00:02:54:01 This is not how I wanted it to be. 00:02:54:01 - 00:02:57:01 At 37 years old. 00:02:57:06 - 00:02:59:21 Everything that you plan out in your head is just. 00:02:59:21 - 00:03:02:16 It's gone. Right. See you then. Thank you. 00:03:02:16 - 00:03:07:05 By knowing I have 40 more years of this, God willing. 00:03:07:17 - 00:03:09:05 But got this far. 00:03:09:05 - 00:03:12:05 Keep going. 00:03:20:06 - 00:03:21:16 Tonight is not supposed to be 00:03:21:16 - 00:03:24:16 anywhere near where she's at today. 00:03:25:01 - 00:03:25:07 Good. 00:03:25:07 - 00:03:28:07 Say, that wasn't bad. 00:03:28:15 - 00:03:29:23 So, you know, crack that time. 00:03:31:04 - 00:03:34:04 She's proving the doctors wrong. 00:03:37:11 - 00:03:38:22 Do you? 00:03:38:22 - 00:03:41:06 That's one. 00:03:41:06 - 00:03:42:07 See? It's going out like that. 00:03:42:07 - 00:03:44:04 Try to keep it up like that. 00:03:44:04 - 00:03:47:04 Okay. 00:03:55:12 - 00:03:58:12 Try to make a fist. 00:03:59:20 - 00:04:01:20 Some moved. 00:04:01:20 - 00:04:04:20 That's a good. 00:04:08:19 - 00:04:09:12 Come on. 00:04:09:12 - 00:04:12:12 Yes. Oh. 00:04:15:01 - 00:04:16:10 It's a win. 00:04:16:10 - 00:04:19:17 I mean she's she's here with us and able to be Ty's mom. 00:04:19:17 - 00:04:22:17 Still. 00:04:22:18 - 00:04:24:00 Oh thank you. 00:04:24:00 - 00:04:25:18 Is it butter cup. 00:04:25:18 - 00:04:28:16 It's a yellow butter. 00:04:28:16 - 00:04:31:03 Just keeping that strong family bond. 00:04:31:03 - 00:04:34:03 That strong family unit I really think is what 00:04:34:06 - 00:04:37:05 what helped progress this far? 00:04:37:05 - 00:04:38:17 Oh, right. 00:04:38:17 - 00:04:40:07 So, like, if my. 00:04:40:07 - 00:04:42:06 She needs me, Ty needs me. 00:04:42:06 - 00:04:45:22 And so I'm going to keep going until just keep going 00:04:45:22 - 00:04:48:22 until, 00:04:49:12 - 00:04:51:12 There is no until just keep going. 00:04:51:12 - 00:04:51:23 I got a book. 00:04:51:23 - 00:04:54:02 I'm going to put mom in bed. Ooh, 00:04:55:11 - 00:04:56:20 I love my family. 00:04:56:20 - 00:04:59:18 It's really all I have when you boil down to it. 00:04:59:18 - 00:05:02:14 Love you. Your turn. 00:05:02:14 - 00:05:05:14 So I did everything I could to keep it. 00:05:05:23 - 00:05:08:05 She chomped on a tomato. 00:05:08:05 - 00:05:10:18 The biggest, reddest one. 00:05:10:18 - 00:05:12:03 You wanna do this one? 00:05:12:03 - 00:05:15:01 If you want, I can read books 00:05:15:01 - 00:05:18:01 for you to love. 00:05:19:07 - 00:05:20:21 The end. 00:05:20:21 - 00:05:22:11 Good job. 00:05:22:11 - 00:05:25:02 You did awesome. 00:05:25:02 - 00:05:26:18 I'll be back in to check on you. 00:05:26:18 - 00:05:28:11 Love you buddy. Good night.
Matt and Kanlaya were a typical young couple forging their lives together when Kanlaya was suddenly debilitated by two massive strokes and a cancer diagnosis that left her paralyzed and cognitively impaired. Matt struggles to maintain some semblance of normalcy and stability for their young son, Ty, while caring for Kanlaya full time. He is dedicated to Kanlaya’s care knowing that what Ty needs most is his mom.
There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.
Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.
Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.
Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.
Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.