My First Priority
A Caregiving Story

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Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.

Transcript
00:00:05:04 - 00:00:07:01
All right, it's time.

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Wake up.

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Come on.

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We got to pick out
your clothes. Now.

00:00:12:09 - 00:00:13:04
And what do you got today?

00:00:13:04 - 00:00:16:04
Tuesday. You got library.

00:00:16:07 - 00:00:19:07
All right, so go get your books,
get everything ready.

00:00:20:02 - 00:00:20:06
All right.

00:00:20:06 - 00:00:21:08
And then your eggs are right
here.

00:00:21:08 - 00:00:23:10
When you're done.

00:00:23:10 - 00:00:25:10
If you take the switch now.

00:00:25:10 - 00:00:27:17
Okay, here I come.

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Ty was three.

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When can Leah
had her massive stroke.

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And when our lives turned upside
down.

00:00:35:21 - 00:00:37:03
Kanlaya and I always said that

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if, God forbid,
anything happened to one of us,

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we ought to put him
as our focus.

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But for me, it was like,
all right,

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if I'm going to put Ty first,
he needs his mom. Oh.

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But I trust you. If.

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Cousin Leah was 35 at the time.

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Young, healthy,

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no medical issues to all
of a sudden become paralyzed.

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Her brain
was permanently damaged.

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At that time, I didn't even know
what a caregiver was,

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but I always thought it was for

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old folks or parents.

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I just learned as much
as I could at the hospital

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changing her, cleaning her.

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The transition

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from hospital to home was tough.

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You're not prepared for it.

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It took a lot of trial and error

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to get things right.

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Oh, you want to do that?

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Yeah.

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Yeah, you get one point.

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In the beginning,
one of the most difficult

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things was juggling
between Cornelia and Ty.

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All right, shoes on.

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We're going to go now.

00:02:02:16 - 00:02:05:16
It was always Ty
and I taking care of her.

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He grew up really fast
through this whole experience.

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Okay.

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Oh, it was great. See,
I love you.

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See you after my mom,
I love you.

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I love you, I love you.

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My main focus was always.

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Just give him the most.

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Normal childhood as possible.

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Here's your backpack.

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This one's.

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Got it.

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All right, let's roll.

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It is tough to see the future
right now.

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I had to quit my job.

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I couldn't juggle

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that and take care of my family
at the same time.

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We've been living off
of savings and donations. Hi.

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Good morning.

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I need to refill a prescription
for my wife.

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This is not how I wanted it
to be.

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At 37 years old.

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Everything that you plan out in
your head is just.

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It's gone. Right.
See you then. Thank you.

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By knowing I have 40 more years
of this, God willing.

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But got this far.

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Keep going.

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Tonight is not supposed to be

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anywhere near
where she's at today.

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Good.

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Say, that wasn't bad.

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So, you know, crack that time.

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She's proving the doctors wrong.

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Do you?

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That's one.

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See? It's going out like that.

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Try to keep it up like that.

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Okay.

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Try to make a fist.

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Some moved.

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That's a good.

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Come on.

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Yes. Oh.

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It's a win.

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I mean she's she's here with us
and able to be Ty's mom.

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Still.

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Oh thank you.

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Is it butter cup.

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It's a yellow butter.

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Just keeping that strong family
bond.

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That strong family unit
I really think is what

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what helped progress this far?

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Oh, right.

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So, like, if my.

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She needs me, Ty needs me.

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And so I'm going to keep going
until just keep going

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until,

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There is no
until just keep going.

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I got a book.

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I'm going
to put mom in bed. Ooh,

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I love my family.

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It's really all I have
when you boil down to it.

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Love you. Your turn.

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So I did everything I could
to keep it.

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She chomped on a tomato.

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The biggest, reddest one.

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You wanna do this one?

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If you want, I can read books

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for you to love.

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The end.

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Good job.

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You did awesome.

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I'll be back in to check on you.

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Love you buddy. Good night.

Matt and Kanlaya were a typical young couple forging their lives together when Kanlaya was suddenly debilitated by two massive strokes and a cancer diagnosis that left her paralyzed and cognitively impaired. Matt struggles to maintain some semblance of normalcy and stability for their young son, Ty, while caring for Kanlaya full time. He is dedicated to Kanlaya’s care knowing that what Ty needs most is his mom.

There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.


Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.

Support for Caregiving Provided By

Otsuka logo
OneAmerica Financial Foundation logo
Comfort Keepers logo
CareScout logo
care.com logo
Evelyn Y. Davis Foundation
RKMF logo
AVDF logo
Ford Foundation logo
rcw foundation logo
Cherish Health logo
Next 50 logo
NAMI logo
Path Foundation logo
care fund logo
JAHF logo
CPB logo

Outreach and Engagement Partners for Caregiving

RCI logos
GIA logo
Milken Institute logo
global coalition on aging logo
Wallis Annenberg GenSpace logo
Elizabeth Dole Foundation logo
National Partnership for Health Care and Hospice Innovation (NPHI) logo
NMHA logo
Fred Rogers Productions logo
Caregiver Action Network (CAN) logo
CTAC logo
AACY logo
CAG Logo
SHRM logo
NAC logo
LSA logo
capc logo
People logo
Forbes logo

Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.

Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.

Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.

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