Caregiving Resources

Caregiving is a journey that benefits from support, knowledge, and self-care. Here is a collection of resources categorized to help family caregivers find the guidance and assistance they need.

Support & Self-Care | Financial & Workplace Support | Emergency & Disaster Preparedness| Dementia & Alzheimer’s Care | Condition-Specific Caregiving | Senior Care & Long-Term Planning | Hotlines | Mental Health | Technology & Innovations | Resources for Veterans | Elder Abuse and Safety Support | Caregiver Rights

Caregiver Support & Self-Care

Resources focused on preventing burnout, maintaining emotional well-being, and offering support. 

• Caregiver to Caregiver: Mental Health Tips – Video featuring insights from ten NAMI caregivers sharing their self-care strategies. (NAMI) 
• Caregiving Begins with Self-Care   – Video of Carol Klocek, CEO of Transforming Lives, explores the importance of self-care in being an effective caregiver. (Well Beings) 
• Respite Care: Providing Support and Relief for Family Caregivers – Information on respite care and how it provides caregivers with much-needed breaks. (Comfort Keepers) 
• Compassion Fatigue: What Family Caregivers Need to Know – Guidance on recognizing and managing caregiver fatigue. (Comfort Keepers) 
• Finding Balance While Caregiving – A Four-Part Webinar Series – A video series from Comfort Keepers on balancing caregiving with self-care. (Comfort Keepers) 
• The Six Stages of a Caregiver’s Journey – Explores the evolving roles and emotions caregivers experience. (Comfort Keepers) 
• Building Stronger Mental Health Support for Caregivers – Discusses the emotional and mental toll of caregiving and ways to support caregivers’ well-being. (NAMI) 
• Caring for the Caregiver – A personal reflection on how self-care strengthens a caregiver’s ability to provide for others. (NAMI) 
• Taking Care of Yourself – Emphasizes the importance of self-care and setting personal limits while caregiving. (NAMI) 
• Family Caregivers and the Gift of Hope and Healing – Highlights experiences from caregivers involved in NAMI’s Family-to-Family program. (NAMI) 
• Survey Reveals Big Gap in Understanding of Depression – Examines how many caregivers also struggle with depression and how this affects their well-being. (NAMI) 

Financial & Workplace Support for Caregivers

Resources to help caregivers navigate the pressures of balancing caregiving with work and financial stability. 

• Working While Caring – A National Survey of Caregiver Stress in the U.S. Workforce (pdf) – A report on how caregiving impacts employment and stress levels. (Rosalynn Carter Institute for Caregivers) 
• Invisible Overtime – What Employers Need to Know About Caregivers (pdf) – A guide to how caregiving responsibilities affect the workforce. (Rosalynn Carter Institute for Caregivers) 
• Avoid the Risks of Hiring a Private Caregiver – Advice on selecting a reputable caregiver and ensuring safety. (Comfort Keepers) 
• New Report Finds Families Struggle Over a Decade to Get Help for Mental Illness – Research on how long caregivers must fight to get adequate support. (NAMI) 
• NAMI Applauds New Report on Caregiving – A policy-oriented report on the realities of caregiving in the U.S. (NAMI) 

Emergency & Disaster Preparedness

Resources to help caregivers plan for unexpected situations and natural disasters. 

• Take Control in 1, 2, 3: Disaster Preparedness Guide for Caregivers (pdf) – A Rosalynn Carter Institute and FEMA-developed guide for disaster preparedness. (Rosalynn Carter Institute for Caregivers) 

• Prepared Military Caregivers Toolkit (pdf) – A customizable emergency plan designed for caregivers of veterans. (Rosalynn Carter Institute for Caregivers) 

• Awareness: The Key to Confidence and Significance for Caregivers – Discusses situational awareness and safety in caregiving environments. (NAMI) 

• Seeking Treatment in an Emergency Department During a Psychiatric Emergency (pdf) – Information on accessing emergency mental health care for loved ones. (NAMI) 

Dementia & Alzheimer’s Care

Essential information for those caring for loved ones with dementia or Alzheimer’s disease.

• Dementia Care Nutrition – Tips on ensuring proper nutrition for seniors with dementia. (Comfort Keepers) 
• Uncovering Pain in Seniors with Dementia – Discusses the challenge of identifying and managing pain in dementia patients. (Comfort Keepers) 
• Seniors and Wandering – Information on wandering behaviors in seniors and how to prevent them. (Comfort Keepers) 
• High Blood Pressure: The Link to Memory Loss – Explains the connection between cognitive decline and hypertension. (Comfort Keepers) 
• Dementia Care: Patient and Caregiver Guide
  Explores the different stages of dementia and offers practical strategies for daily care, communication, memory support, and long-term planning. Designed to ease stress and foster connection across the caregiving journey. (National Partnership for Healthcare and Hospice Innovation (NPHI).

Condition-Specific Caregiving Resources

• Cardiac Patient and Caregiver Guide (English)
  Developed in partnership with the American Heart Association, this resource walks families through symptom management, care planning, and communication with providers while navigating serious heart conditions. (NPHI)
• Guía para Pacientes y Cuidadores de Enfermedades Cardíacas (Español)
  Creada en colaboración con el American Heart Association, esta guía ofrece orientación sobre opciones de tratamiento, manejo de medicamentos, y comunicación con el equipo médico, todo desde una perspectiva culturalmente relevante para familias hispanohablantes. (NPHI)
• Advanced Lung Care: Patient and Caregiver Guide
  Covers the emotional and physical realities of living with advanced lung conditions, including symptom tracking, oxygen use, and planning for next steps. Includes tips for talking with care teams and managing day-to-day support needs. (NPHI)
• Advanced Cancer Care: Patient and Caregiver Guide
  Provides guidance for families navigating late-stage cancer care, including pain and symptom management, advance care planning, and emotional support. Includes caregiver reflections and support resources. (NPHI)

Navigating Senior Care & Long-Term Planning

Helpful resources for planning long-term care, discussing senior living arrangements, and managing finances.

• A Guide to Helping Your Parents Navigate Aging – A comprehensive checklist for planning senior care. (Comfort Keepers) 
• How to Talk to Your Siblings About Senior Care – Advice on navigating family discussions around caregiving responsibilities. (Comfort Keepers) 
• Long-Distance Caregiving for Aging Parents – Strategies for caregiving from afar. (Comfort Keepers) 
• Is it Time for In-Home Care? – Helping your loved ones experience all that life has to offer. (Comfort Keepers) 

Caregiver Hotlines and Help Lines

• 844-GET-NPHI (844-438-6744)
  The NPHI Care Helpline is available 24/7 for patients, families, and caregivers seeking guidance on hospice & palliative care. A member of our team will help answer your questions or help you find a care provider close by. (NPHI)
• 800-950-NAMI (6264) or email info@nami.org
  Available Monday through Friday, 10 a.m. — 10 p.m., ET. The NAMI HelpLine is a free, nationwide peer-support service providing information, resource referrals and support to people living with a mental health condition, their family members and caregivers, mental health providers and the public. (NAMI)
• Caregiver’s Help Desk | (855) 227-3640
  The Caregiver Help Desk offers FREE support to family caregivers, staffed by experts, who can help support you on your caregiving journey. Have convenient, confidential conversations with caregiving experts by phone, email or chat. Access experts Monday through Friday, from 8:00 AM – 7:00 PM EST. Caregiver Action Network (CAN)
•  Text “TOUGH” to 741741
  The Rosalynn Carter Institute (RCI) has partnered with Crisis Text Line to provide free, 24/7 crisis counseling for caregivers. This service offers confidential, text-based mental health support and crisis intervention. (RCI)

Mental Health Caregiving

Resources tailored to caregivers supporting loved ones with mental health conditions.

• Circle of Care Guidebook (pdf) – A NAMI & National Alliance for Caregiving (NAC) collaboration offering guidance for caregivers of individuals with mental illness. (NAMI and NAC) 
• On Pins and Needles: Caregivers of Adults with Mental Illness (pdf)– A comprehensive study by the National Alliance for Caregiving (NAC) that explores the experiences and challenges faced by Americans providing unpaid care to adults with mental health issues. (NAC) 
• Overcoming Stigma: Helping People Accept Their Mental Illness Diagnoses – Strategies for caregivers to help loved ones accept and manage their diagnosis. (NAMI) 
• Advice for Mental Illness Caregivers – Discusses the importance of early conversations in helping loved ones get care. (NAMI) 
• My Son Has Schizophrenia. This is My Advice to Caregivers. – A parent’s personal insights on navigating schizophrenia caregiving. (NAMI) 
• Caregivers: When to Push and When to Show Extra Compassion – A reflection on balancing firm encouragement and patience in caregiving. (NAMI) 
• Mental illness doesn’t just strike an individual. It strikes a family. – Advocacy-based discussion on the impact of mental illness on entire families. (NAMI) 

Technology & Innovations in Caregiving

Emerging digital solutions and AI-driven tools designed to assist caregivers.

• High-Tech With A Human Touch: How AI Can Help Caregivers Reduce Stress – Insights into AI-powered caregiving solutions like TCARE. (Well Beings) 
• A Caregiver’s Guide to Smart Home Technology – Technology today can offer caregivers oversight into the lives of aging loved ones without being intrusive. (AARP) 

Resources for Veterans and Their Families

Veterans Resources for Patients and Caregivers
Highlights federal and community programs available to veterans and their caregivers, including health services, benefits navigation, PTSD support, and end-of-life care planning. (NPHI)

Elder Abuse and Safety Support

Elder Abuse & Domestic Violence Resource Guide
Outlines signs of elder abuse and family violence, with steps to report concerns, connect with social services, and ensure safety. Created with both caregivers and professionals in mind. (NPHI)

Caregiver Rights 

Resources focused on public affairs and caregiver rights.

• Administration for Community Living‘s National Strategy to Support Family Caregivers (pdf) – The Administration for Community Living (ACL) supports the needs of the aging and disability populations and improves access to health care and long-term services. (ACL.gov) 

• Information on the Family and Medical Leave Act (FMLA) – The FMLA is a federal law that allows eligible employees to take up to 12 weeks of unpaid leave per year to care for a family member. 

Have a resource to recommend? Send your suggestions to info@wellbeings.org.

WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.