Caregiving is a journey that benefits from support, knowledge, and self-care. Here is a collection of resources categorized to help family caregivers find the guidance and assistance they need.
Caregiving Begins with Self-Care – Video of Carol Klocek, CEO of Transforming Lives, explores the importance of self-care in being an effective caregiver. (Well Beings)
Prepared Military Caregivers Toolkit (pdf) – A customizable emergency plan designed for caregivers of veterans. (Rosalynn Carter Institute for Caregivers)
Dementia Care: Patient and Caregiver Guide Explores the different stages of dementia and offers practical strategies for daily care, communication, memory support, and long-term planning. Designed to ease stress and foster connection across the caregiving journey. (National Partnership for Healthcare and Hospice Innovation (NPHI).
Condition-Specific Caregiving Resources
Cardiac Patient and Caregiver Guide (English) Developed in partnership with the American Heart Association, this resource walks families through symptom management, care planning, and communication with providers while navigating serious heart conditions. (NPHI)
Guía para Pacientes y Cuidadores de Enfermedades Cardíacas (Español) Creada en colaboración con el American Heart Association, esta guía ofrece orientación sobre opciones de tratamiento, manejo de medicamentos, y comunicación con el equipo médico, todo desde una perspectiva culturalmente relevante para familias hispanohablantes. (NPHI)
Advanced Lung Care: Patient and Caregiver Guide Covers the emotional and physical realities of living with advanced lung conditions, including symptom tracking, oxygen use, and planning for next steps. Includes tips for talking with care teams and managing day-to-day support needs. (NPHI)
Advanced Cancer Care: Patient and Caregiver Guide Provides guidance for families navigating late-stage cancer care, including pain and symptom management, advance care planning, and emotional support. Includes caregiver reflections and support resources. (NPHI)
Navigating Senior Care & Long-Term Planning
Helpful resources for planning long-term care, discussing senior living arrangements, and managing finances.
844-GET-NPHI (844-438-6744) The NPHI Care Helpline is available 24/7 for patients, families, and caregivers seeking guidance on hospice & palliative care. A member of our team will help answer your questions or help you find a care provider close by. (NPHI)
800-950-NAMI (6264) or email info@nami.org Available Monday through Friday, 10 a.m. — 10 p.m., ET. The NAMI HelpLine is a free, nationwide peer-support service providing information, resource referrals and support to people living with a mental health condition, their family members and caregivers, mental health providers and the public. (NAMI)
Caregiver’s Help Desk | (855) 227-3640 The Caregiver Help Desk offers FREE support to family caregivers, staffed by experts, who can help support you on your caregiving journey. Have convenient, confidential conversations with caregiving experts by phone, email or chat. Access experts Monday through Friday, from 8:00 AM – 7:00 PM EST. Caregiver Action Network (CAN)
Text “TOUGH” to 741741 The Rosalynn Carter Institute (RCI) has partnered with Crisis Text Line to provide free, 24/7 crisis counseling for caregivers. This service offers confidential, text-based mental health support and crisis intervention. (RCI)
Mental Health Caregiving
Resources tailored to caregivers supporting loved ones with mental health conditions.
Circle of Care Guidebook (pdf) – A NAMI & National Alliance for Caregiving (NAC) collaboration offering guidance for caregivers of individuals with mental illness. (NAMI and NAC)
On Pins and Needles: Caregivers of Adults with Mental Illness (pdf)– A comprehensive study by the National Alliance for Caregiving (NAC) that explores the experiences and challenges faced by Americans providing unpaid care to adults with mental health issues. (NAC)
Veterans Resources for Patients and Caregivers Highlights federal and community programs available to veterans and their caregivers, including health services, benefits navigation, PTSD support, and end-of-life care planning. (NPHI)
Elder Abuse and Safety Support
Elder Abuse & Domestic Violence Resource Guide Outlines signs of elder abuse and family violence, with steps to report concerns, connect with social services, and ensure safety. Created with both caregivers and professionals in mind. (NPHI)
Caregiver Rights
Resources focused on public affairs and caregiver rights.
Information on the Family and Medical Leave Act(FMLA) – The FMLA is a federal law that allows eligible employees to take up to 12 weeks of unpaid leave per year to care for a family member.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.
Caregiving, a new documentary created with executive producer Bradley Cooper, highlights the challenges and triumphs of caregiving in America. Award-winning actress Uzo Aduba (The Residence, Painkiller, Orange is the New Black) narrates the film, bringing her own experience as a caregiver for her mother to the project. The two-hour documentary will premiere Tuesday, June 24, 2025, at 9 p.m. ET on PBS and the PBS YouTube Channel. An early streaming premiere begins Tuesday, May 27, 2025, on WellBeings.org, PBS.org, and the PBS app.
The two-hour documentary is centered on the personal experiences of caregivers providing for loved ones, and the challenges and triumph they face each day. As the number of caregivers declines, and the number of individuals requiring care in our country increases, the challenges grow. Caregivers require differing types and levels of support. At times, the burdens of caregiving can seem unbearable, regardless of resources. The “needs gap” for information may be greater for caregivers than it is for care recipients. The film will explore these issues and shine a light on innovation for 21st century caregiving.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.