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Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.

Transcript
00:00:06:15 - 00:00:07:19
So crazy looking at

00:00:07:19 - 00:00:10:19
all these old pictures.

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I'm an only child
of divorced parents.

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So I always say it was my mom

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and I against the world.

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All I can really remember about
my mom

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is just my mom with the disease.

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So looking at the pictures helps
to bring me back

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to what life was like
before the disease.

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I was a young

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29 year old living in New York City,
and mom told me

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she had been diagnosed
with Parkinson's disease.

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One minute I'm hanging out with
my friends and having a great time,

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and then the next minute
flying home to Florida, setting up

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appointments to go to our assisted
living facilities.

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As her disease progressed,

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the caregiving duties intensified.

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I'm seeing all of my friends

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being able to just live their lives
however they want to live it.

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That led to so much
resentment towards my mom.

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I would often say,

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I just wish
I had my old mom back.

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Sometimes if she was lucid enough,
she was like,

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I wish you had your old mom too. So.

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A light bulb went on one day.

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I just shifted my mindset to don't
be mad at mom,

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be mad at the disease.

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Something dawned on me, like,
Adrian,

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you're here
to spend time with your mom.

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And I really started
trying to just be present with her.

00:02:04:19 - 00:02:07:14
Often times
I would get in bed with my mom

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and just lay my head on her chest.

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Having that embrace

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meant the world to me.

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While caregiving,

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my time was very precious,

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I still had that dream
of getting married

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and having a family one day.

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I knew that

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if I was really going

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to date somebody,
they need to be a quality person,

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because that would mean having
to take extra time away from my mom.

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I wouldn't talk about

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my mom when I would go on dates.

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Ian was different.

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One night Ian stayed over

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and I get a call from
my mom's assisted living

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that they're sending her out
to the hospital.

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I said, Don't wait for me.
Just go home.

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I don't even know what time
I'm gonna be back from the hospital.

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I think I came home
at six in the morning

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and he was still there.

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Hey, bells.

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How was school?

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Bella was eight years old
the first time we met.

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She's an amazing kid,

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and we developed this close bond.

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Should we put this on the fridge?

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My mom passed away
in August of 2020.

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I felt like I lost my family

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because my mom was like my family.

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This is. This is my new family.

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That really helped my transition

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from caregiver into Mama Bear

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of the household.

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As my mom

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was getting closer to passing.

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She would say,

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Does Ian treat you well?

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Does he love you?

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Like, do you love him?

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Are you happy?

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I truly feel like my mom waited

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until she knew.

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That.

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That I was going
to have somebody in my life.

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Before she passed away.

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Because she didn't

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want to leave this earth
thinking that I would be alone.

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Why are you glad I'm here?

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Because I miss you. Why?

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Because I love you.

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And one of the best things I got
out of my care journey was time.

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Time with my mom.

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I would have never had
this much time

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with my mom
if she would have never gotten sick.

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I miss my mom.

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There's.

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There's no love
like the love of your mom.

Adrienne Marioles is a millennial who put her nascent adult life on hold and moved back to Florida to care for her sick mother. An exploration of a beautiful caregiving journey from isolation to community, and from resentment to purpose. 

There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.


Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.

Support for Caregiving Provided By

Otsuka logo
OneAmerica Financial Foundation logo
Comfort Keepers logo
CareScout logo
care.com logo
Evelyn Y. Davis Foundation
RKMF logo
AVDF logo
Ford Foundation logo
rcw foundation logo
Cherish Health logo
Next 50 logo
NAMI logo
Path Foundation logo
care fund logo
JAHF logo
CPB logo

Outreach and Engagement Partners for Caregiving

RCI logos
GIA logo
Milken Institute logo
global coalition on aging logo
Wallis Annenberg GenSpace logo
Elizabeth Dole Foundation logo
National Partnership for Health Care and Hospice Innovation (NPHI) logo
NMHA logo
Fred Rogers Productions logo
Caregiver Action Network (CAN) logo
CTAC logo
AACY logo
CAG Logo
SHRM logo
NAC logo
LSA logo
capc logo
People logo
Forbes logo

Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.

Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.

Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.

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