
video
Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.
00:00:06:15 - 00:00:07:19 So crazy looking at 00:00:07:19 - 00:00:10:19 all these old pictures. 00:00:11:20 - 00:00:14:20 I'm an only child of divorced parents. 00:00:16:06 - 00:00:18:08 So I always say it was my mom 00:00:18:08 - 00:00:21:08 and I against the world. 00:00:21:10 - 00:00:24:12 All I can really remember about my mom 00:00:25:02 - 00:00:28:09 is just my mom with the disease. 00:00:29:15 - 00:00:33:16 So looking at the pictures helps to bring me back 00:00:34:07 - 00:00:37:08 to what life was like before the disease. 00:00:45:23 - 00:00:47:16 I was a young 00:00:47:16 - 00:00:52:12 29 year old living in New York City, and mom told me 00:00:52:12 - 00:00:55:12 she had been diagnosed with Parkinson's disease. 00:00:56:19 - 00:01:00:02 One minute I'm hanging out with my friends and having a great time, 00:01:00:12 - 00:01:04:05 and then the next minute flying home to Florida, setting up 00:01:04:05 - 00:01:07:05 appointments to go to our assisted living facilities. 00:01:08:22 - 00:01:10:23 As her disease progressed, 00:01:10:23 - 00:01:13:23 the caregiving duties intensified. 00:01:14:12 - 00:01:16:10 I'm seeing all of my friends 00:01:16:10 - 00:01:19:23 being able to just live their lives however they want to live it. 00:01:20:00 - 00:01:24:10 That led to so much resentment towards my mom. 00:01:28:19 - 00:01:29:03 I would often say, 00:01:29:03 - 00:01:32:08 I just wish I had my old mom back. 00:01:33:02 - 00:01:35:12 Sometimes if she was lucid enough, she was like, 00:01:35:12 - 00:01:38:16 I wish you had your old mom too. So. 00:01:42:19 - 00:01:45:01 A light bulb went on one day. 00:01:45:01 - 00:01:49:04 I just shifted my mindset to don't be mad at mom, 00:01:49:15 - 00:01:52:14 be mad at the disease. 00:01:53:07 - 00:01:56:05 Something dawned on me, like, Adrian, 00:01:56:05 - 00:01:59:05 you're here to spend time with your mom. 00:01:59:14 - 00:02:03:10 And I really started trying to just be present with her. 00:02:04:19 - 00:02:07:14 Often times I would get in bed with my mom 00:02:07:14 - 00:02:10:23 and just lay my head on her chest. 00:02:14:04 - 00:02:16:16 Having that embrace 00:02:16:16 - 00:02:19:16 meant the world to me. 00:02:23:19 - 00:02:25:03 While caregiving, 00:02:25:03 - 00:02:28:03 my time was very precious, 00:02:28:19 - 00:02:31:03 I still had that dream of getting married 00:02:31:03 - 00:02:34:03 and having a family one day. 00:02:34:16 - 00:02:36:01 I knew that 00:02:36:01 - 00:02:36:22 if I was really going 00:02:36:22 - 00:02:40:17 to date somebody, they need to be a quality person, 00:02:40:17 - 00:02:44:21 because that would mean having to take extra time away from my mom. 00:02:46:16 - 00:02:48:06 I wouldn't talk about 00:02:48:06 - 00:02:51:06 my mom when I would go on dates. 00:02:51:21 - 00:02:53:04 Ian was different. 00:02:54:17 - 00:02:56:19 One night Ian stayed over 00:02:57:09 - 00:02:59:20 and I get a call from my mom's assisted living 00:02:59:20 - 00:03:01:19 that they're sending her out to the hospital. 00:03:01:19 - 00:03:04:15 I said, Don't wait for me. Just go home. 00:03:04:15 - 00:03:07:15 I don't even know what time I'm gonna be back from the hospital. 00:03:09:00 - 00:03:11:07 I think I came home at six in the morning 00:03:11:07 - 00:03:12:21 and he was still there. 00:03:12:21 - 00:03:14:04 Hey, bells. 00:03:14:04 - 00:03:16:10 How was school? 00:03:16:10 - 00:03:19:14 Bella was eight years old the first time we met. 00:03:20:09 - 00:03:22:14 She's an amazing kid, 00:03:22:14 - 00:03:25:21 and we developed this close bond. 00:03:25:22 - 00:03:27:09 Should we put this on the fridge? 00:03:27:09 - 00:03:32:05 My mom passed away in August of 2020. 00:03:32:19 - 00:03:35:19 I felt like I lost my family 00:03:35:19 - 00:03:38:08 because my mom was like my family. 00:03:38:08 - 00:03:40:05 This is. This is my new family. 00:03:42:08 - 00:03:44:15 That really helped my transition 00:03:44:15 - 00:03:47:17 from caregiver into Mama Bear 00:03:47:17 - 00:03:50:17 of the household. 00:03:52:06 - 00:03:53:08 As my mom 00:03:53:08 - 00:03:56:08 was getting closer to passing. 00:03:56:18 - 00:03:58:09 She would say, 00:03:58:09 - 00:04:00:22 Does Ian treat you well? 00:04:00:22 - 00:04:02:01 Does he love you? 00:04:02:01 - 00:04:04:01 Like, do you love him? 00:04:04:01 - 00:04:06:17 Are you happy? 00:04:06:17 - 00:04:09:16 I truly feel like my mom waited 00:04:09:23 - 00:04:12:23 until she knew. 00:04:14:00 - 00:04:15:00 That. 00:04:15:00 - 00:04:18:00 That I was going to have somebody in my life. 00:04:18:09 - 00:04:20:16 Before she passed away. 00:04:20:16 - 00:04:21:08 Because she didn't 00:04:21:08 - 00:04:24:08 want to leave this earth thinking that I would be alone. 00:04:25:04 - 00:04:27:00 Why are you glad I'm here? 00:04:27:00 - 00:04:29:21 Because I miss you. Why? 00:04:29:21 - 00:04:32:03 Because I love you. 00:04:32:03 - 00:04:35:06 And one of the best things I got out of my care journey was time. 00:04:36:04 - 00:04:38:15 Time with my mom. 00:04:38:15 - 00:04:41:05 I would have never had this much time 00:04:41:05 - 00:04:44:19 with my mom if she would have never gotten sick. 00:04:48:00 - 00:04:49:12 I miss my mom. 00:04:51:20 - 00:04:52:16 There's. 00:04:52:16 - 00:04:55:14 There's no love like the love of your mom.
Adrienne Marioles is a millennial who put her nascent adult life on hold and moved back to Florida to care for her sick mother. An exploration of a beautiful caregiving journey from isolation to community, and from resentment to purpose.
There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.
Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.
Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.
Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.
Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.