
video
Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.
00:00:03:19 - 00:00:06:20 I was my mother's pride and joy. 00:00:08:03 - 00:00:10:19 She gave all of herself to the role 00:00:10:19 - 00:00:13:19 of caring for me. 00:00:15:04 - 00:00:18:20 That is probably what allowed me 00:00:19:20 - 00:00:22:20 to show up for her as well. 00:00:24:13 - 00:00:25:08 As an only child, 00:00:25:08 - 00:00:29:16 I always thought that I would mourn her by myself 00:00:29:16 - 00:00:31:02 and I did not. 00:00:35:17 - 00:00:38:21 Hey, guys, I haven't done a video in a while. 00:00:38:23 - 00:00:42:18 A lot of crazy stuff's been happening since um, since my last one, 00:00:42:18 - 00:00:45:18 I moved to Los Angeles to be a caregiver for my grandmother 00:00:46:07 - 00:00:49:06 and my mother. 00:00:49:06 - 00:00:53:07 My grandmother has progressed 00:00:54:05 - 00:00:56:18 Alzheimer's, and we don't know exactly 00:00:56:18 - 00:00:59:18 what's going on with my mom at the moment. 00:00:59:22 - 00:01:03:09 I moved home at 29 to a grandmother 00:01:03:09 - 00:01:06:09 who didn't know who I was, 00:01:07:05 - 00:01:11:11 and to a mom who is very excited that I was home 00:01:11:11 - 00:01:16:16 but had no understanding of what was really going on. 00:01:18:03 - 00:01:21:03 And my mom was so young at the time. 00:01:21:08 - 00:01:26:06 The idea that she had dementia didn't 00:01:27:10 - 00:01:29:10 ring for me at all. 00:01:29:10 - 00:01:33:14 So my mom found this really - “Is she coming today?” - bright shirt. 00:01:33:14 - 00:01:35:03 Your mom. Your mom. 00:01:35:03 - 00:01:36:21 No no, no. 00:01:36:21 - 00:01:38:20 You haven't seen her? That's okay. 00:01:38:20 - 00:01:43:13 When my grandmother passed in 2018, 00:01:43:21 - 00:01:47:04 it was my mom and I. 00:01:47:14 - 00:01:50:22 I could manage caring for one person 00:01:50:22 - 00:01:53:22 who had Alzheimer's. 00:01:54:03 - 00:01:57:03 Much better than two. 00:01:57:14 - 00:02:00:14 So I have a hot washcloth in my hand, and I'm looking for my mom. 00:02:00:14 - 00:02:03:05 She just walked off. There she is. 00:02:03:05 - 00:02:06:13 My life became caring for my mom. 00:02:06:22 - 00:02:09:19 I knew that had I not taken on the role 00:02:09:19 - 00:02:13:23 of caring for her, that she would end up on the street somewhere. 00:02:13:23 - 00:02:18:15 And all I could picture was like her sitting outside. 00:02:19:16 - 00:02:22:16 And I was just like, absolutely no, I can't. 00:02:23:05 - 00:02:25:06 Pandemic hits 2020. 00:02:25:06 - 00:02:26:21 Hey. Hey, mama. 00:02:26:21 - 00:02:29:05 We have to take a Covid test. 00:02:29:05 - 00:02:35:20 I noticed that the lack of social involvement for my mom, 00:02:36:12 - 00:02:43:16 made her regress much faster. 00:02:44:02 - 00:02:46:15 You’re beautiful. Me? 00:02:46:15 - 00:02:47:09 Thank you. 00:02:47:09 - 00:02:50:09 You're beautiful. 00:02:50:19 - 00:02:54:07 My mom became almost completely non-verbal 00:02:55:17 - 00:02:57:14 over 2020. 00:02:57:14 - 00:03:00:02 That is probably what really propelled us 00:03:00:02 - 00:03:03:02 to start sharing on TikTok. 00:03:04:08 - 00:03:07:02 People fell in love with her instantly. 00:03:07:02 - 00:03:08:10 It's for you. 00:03:08:10 - 00:03:12:07 And it became just a really good time. 00:03:12:08 - 00:03:13:21 Oh, in the camera you ham. 00:03:13:21 - 00:03:18:17 People became active participants in her care. 00:03:18:19 - 00:03:21:13 Hey, Hannah, we're going to put some clothes on the baby doll. 00:03:21:13 - 00:03:23:11 We appreciate it. 00:03:23:11 - 00:03:24:16 We have some clothes for him. 00:03:24:16 - 00:03:27:00 Oh my God, woah! 00:03:27:00 - 00:03:32:08 Hearing people say that like you're doing such a good job. 00:03:32:15 - 00:03:34:13 It became validating. 00:03:34:13 - 00:03:36:09 Is that your baby? Yes. 00:03:37:13 - 00:03:40:13 People would notice her out in public 00:03:40:21 - 00:03:43:20 and want to hug her and, 00:03:44:03 - 00:03:47:03 and, they would tell me 00:03:47:10 - 00:03:50:10 their own care stories. 00:03:51:06 - 00:03:53:21 It just became a community of people 00:03:53:21 - 00:03:56:21 who all felt lonely at one point. 00:03:57:11 - 00:04:00:15 It opened my mind up to what community 00:04:00:19 - 00:04:03:19 really is. 00:04:11:09 - 00:04:12:13 I honestly think that 00:04:12:13 - 00:04:15:13 this is the hardest experience that I will have. 00:04:15:13 - 00:04:18:13 And the fact that I've gotten 00:04:18:14 - 00:04:23:18 through it while also making something from it that helps others. 00:04:23:18 - 00:04:29:00 It propels me forward. 00:04:33:05 - 00:04:36:05 I have to go to the cemetery. 00:04:38:19 - 00:04:40:15 Because they picked up my mom 00:04:40:15 - 00:04:43:15 from the hospital. 00:04:44:09 - 00:04:47:06 And nothing in me wants to go right now. 00:04:47:06 - 00:04:50:00 My mom passed suddenly. 00:04:50:00 - 00:04:53:14 She was up dancing one week, and then the next week. 00:04:53:14 - 00:04:56:13 Not here. 00:04:58:14 - 00:05:00:14 I thought I was getting better. 00:05:00:14 - 00:05:05:21 But when they say grief is a roller coaster. 00:05:05:21 - 00:05:09:00 That **** is true. 00:05:11:22 - 00:05:15:06 And there is just a sense of, 00:05:16:08 - 00:05:17:22 community that 00:05:17:22 - 00:05:20:22 I, as an only child, have never, 00:05:21:22 - 00:05:23:06 ever had. 00:05:23:06 - 00:05:26:13 I was mourning with hundreds of thousands 00:05:26:21 - 00:05:29:17 and that community. 00:05:29:17 - 00:05:32:06 My mom and I made that.
Jacquelyn is a writer and screenwriter who was the full-time caregiver for both her mother and grandmother, who had dementia concurrently. An only child of separated parents, she often felt overwhelmed and burnt out, but in sharing her story on social media, she found a chosen family of cheerleaders who supported her during the hardest times.
There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.
Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.
Producer’s Note (Nov. 22, 2024): Funding for Caregiving is provided in part by Otsuka America Pharmaceutical. Funders do not have any editorial input whatsoever in Caregiving, including the selection of featured caregivers.
Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.
Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.
Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.