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Caregiving – a new documentary and national engagement campaign on the state and stakes of providing care in America.

Transcript
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I was my mother's pride and joy.

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She gave all of herself to the role

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of caring for me.

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That is probably what allowed me

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to show up for her as well.

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As an only child,

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I always thought that I would mourn her by myself

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and I did not.

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Hey, guys,
I haven't done a video in a while.

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A lot of crazy stuff's been happening
since um, since my last one,

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I moved to Los Angeles to be a caregiver
for my grandmother

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and my mother.

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My grandmother has progressed

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Alzheimer's, and we don't know exactly

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what's going on with my mom at the moment.

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I moved home at 29 to a grandmother

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who didn't know who I was,

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and to a mom
who is very excited that I was home

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but had no understanding
of what was really going on.

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And my mom was so young at the time.

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The idea that she had dementia didn't

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ring for me at all.

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So my mom found this really - “Is
she coming today?” - bright shirt.

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Your mom. Your mom.

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No no, no.

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You haven't seen her? That's okay.

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When my grandmother passed in 2018,

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it was my mom and I.

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I could manage caring for one person

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who had Alzheimer's.

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Much better than two.

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So I have a hot washcloth in my hand,
and I'm looking for my mom.

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She just walked off. There she is.

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My life became caring for my mom.

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I knew that had I not taken on the role

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of caring for her, that she would end up
on the street somewhere.

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And all I could
picture was like her sitting outside.

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And I was just like, absolutely
no, I can't.

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Pandemic hits 2020.

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Hey. Hey, mama.

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We have to take a Covid test.

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I noticed that
the lack of social involvement for my mom,

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made her regress much faster.

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You’re beautiful. Me?

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Thank you.

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You're beautiful.

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My mom became almost completely non-verbal

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over 2020.

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That is probably what really propelled us

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to start sharing on TikTok.

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People fell in love with her instantly.

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It's for you.

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And it became just a really good time.

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Oh, in the camera you ham.

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People became
active participants in her care.

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Hey, Hannah, we're going
to put some clothes on the baby doll.

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We appreciate it.

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We have some clothes for him.

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Oh my God, woah!

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Hearing people say that
like you're doing such a good job.

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It became validating.

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Is that your baby? Yes.

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People would notice her out in public

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and want to hug her and,

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and, they would tell me

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their own care stories.

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It just became a community of people

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who all felt lonely at one point.

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It opened my mind up to what community

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really is.

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I honestly think that

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this is the hardest experience
that I will have.

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And the fact that I've gotten

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through it while also making
something from it that helps others.

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It propels me forward.

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I have to go to the cemetery.

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Because they picked up my mom

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from the hospital.

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And nothing in me wants to go right now.

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My mom passed suddenly.

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She was up dancing one week,
and then the next week.

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Not here.

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I thought I was getting better.

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But when they say
grief is a roller coaster.

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That **** is true.

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And there is just a sense of,

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community that

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I, as an only child, have never,

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ever had.

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I was mourning with hundreds of thousands

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and that community.

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My mom and I made that.

Jacquelyn is a writer and screenwriter who was the full-time caregiver for both her mother and grandmother, who had dementia concurrently. An only child of separated parents, she often felt overwhelmed and burnt out, but in sharing her story on social media, she found a chosen family of cheerleaders who supported her during the hardest times.

There are an estimated 53 million to 105.6 million U.S. adults providing unpaid caregiving for family or friends. Every one of them has a story that’s filled with sacrifice, love, and the pursuit of dignity in care. Stream Caregiving now on WellBeings.org, the PBS App and PBS.org.


Caregiving is a production of Lea Pictures and WETA Washington, D.C., in association with Ark media. Chris Durrance serves as Director for Ark media. Barak Goodman is Series Producer, Chris Durrance is Senior Producer and Ruth Fertig is Producer for Ark media. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley.

Producer’s Note (Nov. 22, 2024): Funding for Caregiving is provided in part by Otsuka America Pharmaceutical. Funders do not have any editorial input whatsoever in Caregiving, including the selection of featured caregivers.

Support for Caregiving Provided By

Otsuka logo
OneAmerica Financial Foundation logo
Comfort Keepers logo
CareScout logo
care.com logo
Evelyn Y. Davis Foundation
RKMF logo
AVDF logo
Ford Foundation logo
rcw foundation logo
Cherish Health logo
Next 50 logo
NAMI logo
Path Foundation logo
care fund logo
JAHF logo
CPB logo

Outreach and Engagement Partners for Caregiving

RCI logos
GIA logo
Milken Institute logo
global coalition on aging logo
Wallis Annenberg GenSpace logo
Elizabeth Dole Foundation logo
National Partnership for Health Care and Hospice Innovation (NPHI) logo
NMHA logo
Fred Rogers Productions logo
Caregiver Action Network (CAN) logo
CTAC logo
AACY logo
CAG Logo
SHRM logo
NAC logo
LSA logo
capc logo
People logo
Forbes logo

Support Provided By
Support for Caregiving is made possible by Otsuka America Pharmaceutical Inc.; OneAmerica Financial Foundation; Comfort Keepers; CareScout Holdings, Inc.; Cherish Health Inc. dba Cherish; Care.com; Evelyn Y. Davis Foundation; Richard King Mellon Foundation; The Arthur Vining Davis Foundations; Ford Foundation; Ralph C. Wilson, Jr. Foundation; NextFifty Initiative (Next50); National Alliance on Mental Illness (NAMI); PATH Foundation; Care for All with Respect and Equity (CARE) Fund; The John A. Hartford Foundation; and the Corporation for Public Broadcasting.

Outreach and Engagement Partners
National outreach and engagement partners for Caregiving include Rosalynn Carter Institute for Caregivers; Grantmakers In Aging; Milken Institute | Future of Aging; Global Coalition on Aging; Elizabeth Dole Foundation; National Partnership for Healthcare and Hospice Innovation; National Minority Health Association; Fred Rogers Productions; Caregiver Action Network; The Coalition to Transform Advanced Care; American Association of Caregiving Youth; Caring Across Generations; SHRM and SHRM Foundation; National Alliance for Caregiving; Lutheran Services in America; Center to Advance Palliative Care; PEOPLE; and Forbes.com.

Caregiving is a Production Of
Lea Pictures and WETA Washington, D.C., in association with Ark Media. For Ark Media, Chris Durrance serves as Director and Senior Producer; Barak Goodman is Series Producer; and Ruth Fertig is Producer. Executive Producers for Lea Pictures are Bradley Cooper and Weston Middleton. Executive Producers for WETA are John F. Wilson and Tom Chiodo. Producer for WETA is Kate Kelly. Production is managed for WETA by Jim Corbley. Consulting Producer is Paul Irving.

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