Caregiving is a journey that benefits from support, knowledge, and self-care. Here is a collection of resources categorized to help family caregivers find the guidance and assistance they need.
Caregiver Support & Self-Care
Resources focused on preventing burnout, maintaining emotional well-being, and offering support.
- Caregiving Begins with Self-Care – Video of Carol Klocek, CEO of Transforming Lives, explores the importance of self-care in being an effective caregiver. (Well Beings)
- Respite Care: Providing Support and Relief for Family Caregivers – Information on respite care and how it provides caregivers with much-needed breaks. (Comfort Keepers)
- Compassion Fatigue: What Family Caregivers Need to Know – Guidance on recognizing and managing caregiver fatigue. (Comfort Keepers)
- Finding Balance While Caregiving – A Four-Part Webinar Series – A video series from Comfort Keepers on balancing caregiving with self-care. (Comfort Keepers)
- The Six Stages of a Caregiver’s Journey – Explores the evolving roles and emotions caregivers experience. (Comfort Keepers)
- Building Stronger Mental Health Support for Caregivers – Discusses the emotional and mental toll of caregiving and ways to support caregivers’ well-being. (NAMI)
- Caregiver to Caregiver: Mental Health Tips – Video featuring insights from ten NAMI caregivers sharing their self-care strategies. (NAMI)
- Caring for the Caregiver – A personal reflection on how self-care strengthens a caregiver’s ability to provide for others. (NAMI)
- Taking Care of Yourself – Emphasizes the importance of self-care and setting personal limits while caregiving. (NAMI)
- Family Caregivers and the Gift of Hope and Healing – Highlights experiences from caregivers involved in NAMI’s Family-to-Family program. (NAMI)
- Survey Reveals Big Gap in Understanding of Depression – Examines how many caregivers also struggle with depression and how this affects their well-being. (NAMI)
Financial & Workplace Support for Caregivers
Resources to help caregivers navigate the pressures of balancing caregiving with work and financial stability.
- Working While Caring – A National Survey of Caregiver Stress in the U.S. Workforce (pdf) – A report on how caregiving impacts employment and stress levels. (Rosalynn Carter Institute for Caregivers)
- Invisible Overtime – What Employers Need to Know About Caregivers (pdf) – A guide to how caregiving responsibilities affect the workforce. (Rosalynn Carter Institute for Caregivers)
- Avoid the Risks of Hiring a Private Caregiver – Advice on selecting a reputable caregiver and ensuring safety. (Comfort Keepers)
- New Report Finds Families Struggle Over a Decade to Get Help for Mental Illness – Research on how long caregivers must fight to get adequate support. (NAMI)
- NAMI Applauds New Report on Caregiving – A policy-oriented report on the realities of caregiving in the U.S. (NAMI)
Emergency & Disaster Preparedness
Resources to help caregivers plan for unexpected situations and natural disasters.
- Take Control in 1, 2, 3: Disaster Preparedness Guide for Caregivers (pdf) – A Rosalynn Carter Institute and FEMA-developed guide for disaster preparedness. (Rosalynn Carter Institute for Caregivers)
- Prepared Military Caregivers Toolkit (pdf) – A customizable emergency plan designed for caregivers of veterans. (Rosalynn Carter Institute for Caregivers)
- Awareness: The Key to Confidence and Significance for Caregivers – Discusses situational awareness and safety in caregiving environments. (NAMI)
- Seeking Treatment in an Emergency Department During a Psychiatric Emergency (pdf) – Information on accessing emergency mental health care for loved ones. (NAMI)
Dementia & Alzheimer’s Care
Essential information for those caring for loved ones with dementia or Alzheimer’s disease.
- Dementia Care Nutrition – Tips on ensuring proper nutrition for seniors with dementia. (Comfort Keepers)
- Uncovering Pain in Seniors with Dementia – Discusses the challenge of identifying and managing pain in dementia patients. (Comfort Keepers)
- Seniors and Wandering – Information on wandering behaviors in seniors and how to prevent them. (Comfort Keepers)
- High Blood Pressure: The Link to Memory Loss – Explains the connection between cognitive decline and hypertension. (Comfort Keepers)
Navigating Senior Care & Long-Term Planning
Helpful resources for planning long-term care, discussing senior living arrangements, and managing finances.
- A Guide to Helping Your Parents Navigate Aging – A comprehensive checklist for planning senior care. (Comfort Keepers)
- How to Talk to Your Siblings About Senior Care – Advice on navigating family discussions around caregiving responsibilities. (Comfort Keepers)
- Long-Distance Caregiving for Aging Parents – Strategies for caregiving from afar. (Comfort Keepers)
- Is it Time for In-Home Care? – Helping your loved ones experience all that life has to offer. (Comfort Keepers)
Mental Health Caregiving
Resources tailored to caregivers supporting loved ones with mental health conditions.
- Circle of Care Guidebook (pdf) – A NAMI & National Alliance for Caregiving (NAC) collaboration offering guidance for caregivers of individuals with mental illness. (NAMI and NAC)
- On Pins and Needles: Caregivers of Adults with Mental Illness (pdf)– A comprehensive study by the National Alliance for Caregiving (NAC) that explores the experiences and challenges faced by Americans providing unpaid care to adults with mental health issues. (NAC)
- Caregiver to Caregiver: Mental Health Tips – Video of NAMI caregivers sharing advice for managing mental health while caregiving. (NAMI)
- Overcoming Stigma: Helping People Accept Their Mental Illness Diagnoses – Strategies for caregivers to help loved ones accept and manage their diagnosis. (NAMI)
- Advice for Mental Illness Caregivers – Discusses the importance of early conversations in helping loved ones get care. (NAMI)
- My Son Has Schizophrenia. This is My Advice to Caregivers. – A parent’s personal insights on navigating schizophrenia caregiving. (NAMI)
- Caregivers: When to Push and When to Show Extra Compassion – A reflection on balancing firm encouragement and patience in caregiving. (NAMI)
- Mental illness doesn’t just strike an individual. It strikes a family. – Advocacy-based discussion on the impact of mental illness on entire families. (NAMI)
Technology & Innovations in Caregiving
Emerging digital solutions and AI-driven tools designed to assist caregivers.
- High-Tech With A Human Touch: How AI Can Help Caregivers Reduce Stress – Insights into AI-powered caregiving solutions like TCARE. (Well Beings)
- A Caregiver’s Guide to Smart Home Technology – Technology today can offer caregivers oversight into the lives of aging loved ones without being intrusive. (AARP)
Caregiver Rights
Resources focused on public affairs and caregiver rights.
- Administration for Community Living‘s National Strategy to Support Family Caregivers (pdf) – The Administration for Community Living (ACL) supports the needs of the aging and disability populations, and improves access to health care and long-term services. (ACL.gov)
- Information on the Family and Medical Leave Act (FMLA) – The FMLA is a federal law that allows eligible employees to take up to 12 weeks of unpaid leave per year to provide care for a family member.
Have a resource to recommend? Send your suggestions to info@wellbeings.org.
WellBeings.org is a health and wellness resource, not a crisis or suicide response website. If you are in crisis, or experiencing thoughts of suicide, please call or text the 988 Suicide & Crisis Lifeline at 988. The service is free and available 24 hours a day, seven days a week.